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How to Find US-Based Morgellons Disease Support Groups

Fighting Morgellons disease can be a lonely battle. Because it is not a well-known condition, it can be difficult to find support. However, in the U.S. alone, there are more than 20,000 cases of Morgellons. That means that it is possible for you to get support from other Morgellons patients. If you’re looking for a connection with another fellow Morgellons sufferer, the internet is your best friend. With some searching, you can discover if there are in-person Morgellons disease support groups near you. If not, there are many online resources for Morgellons awareness as well. Here are some tips on where to head first.

Search online for in-person support groups

A simple Google search just might reveal an in-person support group located near you. You’re more likely to find Morgellons support groups near larger cities, but even some smaller towns have Lyme disease support groups (which, although it’s not the same disease, can be just as helpful as Morgellons-focused groups). Try typing in a few different keywords (such as Morgellons, support group, awareness, etc.) to locate a group that’s close to your home.

Check Morgellons awareness sites

The Charles E. Holman Morgellons Disease Foundation is a grassroots activist group dedicated to the research, education, diagnosis, and treatment of Morgellons. Their mission is to find the cause and cure of the condition. Their site provides patients with a wealth of resources, including current research links and health tips.

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The internet can be a great place to find support if you’re suffering from Morgellons disease.

Head to Facebook for support

Facebook is a great way to connect with fellow Morgellons sufferers (especially if you live in an area that doesn’t offer in-person groups). Most of these groups are “closed,” which means that you must make a request to join the group. You’ll then be approved by the admins for the group, and you can get started posting and reading other people’s posts. A “closed” group is actually a good thing since that means the admins are working to keep the group Morgellons-focused (no spam posts!) and make it a conducive environment for people discussing personal and sensitive medical information. Here are a few pages and groups worth looking into on Facebook:

  • Morgellons Awareness: This page offers posts from other Morgellons patients, as well as articles and resources to help with Morgellons awareness. Morgellons Awareness is open to all, so feel free to like or follow the page to get up-to-date notifications of new posts.
  • Morgellons Extreme and Emerging Illnesses: This group currently has over 2,300 members who can connect with one another, ask questions, or just post concerns regarding their Morgellons diagnosis.
  • Morgellons: An Open Forum: With more than 2,650 members, this forum provides opportunities for patients to interact with one another in a safe environment.
  • Morgellons Healing: This group (with over 1,400 members) offers healing tips and protocol to help other sufferers on their healing journey.

Try MeetUp.com

MeetUp.com offers an easy way to find other people in your area who are dealing with Morgellons disease. Try searching their site for local, in-person Morgellons or Lyme disease support groups. If you don’t find one with this specific theme, consider joining an in-person chronic illness support group – there could be some overlap in support techniques with these types of groups that you might find helpful. Any supportive environment will help you feel more connected and less alone on your journey.

Be open to groups that meet via Skype or over the phone

Searching the web for Morgellons support groups might also lead you to organizations that hold meetings via Skype or over the phone. For example, a New Jersey group called “Get Your Life Back,” led by author Richard Kuhns, holds meetings about once a month for members. Typically, about 30 individuals get on a conference call where they can share their experiences with Morgellons, offer each other support, and get their questions answered. Just because these groups are not held in person doesn’t mean they can’t offer a supportive environment for people who often feel isolated.

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As well as in-person Morgellons disease support groups, there are online options that can help you through your struggles.

Consult with your doctor

Your doctor might know of popular Morgellons support groups in your area. It’s possible they can recommend meet-ups where you can connect with other Morgellons patients. Let them know that you’re interested in being a member of a support group so that if other patients express interest as well, your doctor will see there’s a need for this type of group.

Start your own group

If you aren’t able to find support in a way that feels comfortable to you, consider starting your own group – whether in-person or online. Because Morgellons disease is not extremely common, you might need to develop your own set of resources to get the right kind of support for your specific needs. Starting your own group can also help raise awareness about Morgellons disease, which can only help the condition to become more well-known and researched.

You don’t have to be alone in your fight against Morgellons. There are definitely other people going through the same struggle as you. To get support, try these tips to find Morgellons disease support groups that might help you through your journey.

Infectolab - health care

What To Do If You Have Morgellons Disease In The American Health Care System

Suffering from any disease can be unnerving, especially when it comes to the U.S. health care system with its notoriously high costs and stringent insurance protocols. But for people with Morgellons disease, the onset of this particular disorder can create a whole host of issues separate from the debilitating effects of the disease itself. The main issue is that Morgellons isn’t formally recognized by any official health care body in America or abroad. Despite the Centers for Disease Control and Prevention (CDC) conducting numerous tests in the late 2010s, they could find no specific cause for the disease, with a number of results coming back inconclusive. Despite this, thousands upon thousands of patients across the world report suffering from the disease, a number that keeps increasing with every passing year. So what exactly can you do to further your case when you suffer from a disease that isn’t officially recognized by the health care system?

Continue reading “What To Do If You Have Morgellons Disease In The American Health Care System”
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6 Reasons Why Lyme Disease Often Goes Undetected in the U.S.

Cases of Lyme disease that go undetected and untreated can end up wreaking havoc on a person’s health. There can be more severe symptoms that greatly impact someone’s ability to get treatment and to recover. Here are six common reasons why Lyme disease can go untreated.  Continue reading “6 Reasons Why Lyme Disease Often Goes Undetected in the U.S.”

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Why Maine Is The Worst State For Lyme Disease

Although Lyme disease is a prevalent disorder all over America, and has turned up cases in every mainland state, the North East is particularly associated with Lyme – and with good reason: it’s a hotbed of deer ticks, the insects that are the sole transmitters of Lyme-inducing bacteria. The disease is becoming something of an epidemic as it’s so difficult to treat properly and diagnose, and while it was previously thought that you could only contract Lyme by visiting certain states, it’s now known that you can contract it anywhere in the U.S., making it all the more dangerous for citizens everywhere. On top of that, the “North East exclusivity” myth makes it harder for doctors in other parts of the country to diagnose Lyme, as they don’t consider it when approaching the symptoms. Despite this, there’s no smoke without fire; a recent poll put Maine as the number one worst state for Lyme disease.

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Morgellons Disease In The USA: This Mysterious Illness Explained

In the pantheon of human diseases, there are more than a few strange disorders that we’re unfortunately susceptible to as a species. Morgellons disease, however, must fall near the top. Many people have never heard of this bizarre condition, which currently stands at the fringes of contemporary medicine; however, it’s becoming more and more visible thanks to intense research on behalf of grassroots organizations like the Charles E. Holman Foundation, whose objective is to find a cause and ultimately treatment for this disturbing disorder. Morgellons disease isn’t a life-threatening illness, but the symptoms can be so persistent and debilitating that many patients find themselves utterly crippled by it. This suffering is compounded by the fact that many doctors don’t believe that Morgellons is a real condition, and will often try to convince their patients that they’re suffering from some kind of delusional disorder. So what exactly is this strange disorder that seems to half-exist, and what are the symptoms? Continue reading “Morgellons Disease In The USA: This Mysterious Illness Explained”